I, Wonder Woman

Finally, after 4 months I am able to sit down and write about what  was (I am claiming it) my last surgery. Honestly this one was so much more traumatic that all of my previous surgeries, so much so that I have avoided writing about it. There was no comical spin to put on it, and I still struggle finding  a positive spin ( other than the fact that I’m still alive).  Initially I was supposed to check in Friday, and be home by Monday, Tuesday the latest. I planned accordingly, making sure I did laundry, cleaned the house, arranged for childcare and pick up of my then 5 year old. In my  mind, I was thinking, nothing is as extreme as my previous surgery. That was 15 hours of surgery, this would be like 6, no more than 8. This was only my stomach, not my stomach and breasts. It would be a breeze, I was ready for it…or so I thought. My surgeon after all, told me she was the "Hernia Guru" and I love a confident women. I especially love that she showed up in a Wonder Woman surgical hat, and matching socks. Wonder woman is my ring tone, Wonder Woman is kick ass. We were gonna kick that hernia’s ass. And she reminded us of how Lucky a day it was 7/7/17 !!!! Then she started explaining things. As I heard the words epidural, catheter, my blood pressure shot up like 30 points on the monitor and I had to breathe it out. As afraid as I was there, was no turning back. 

My aunt took this picture as I tried to stay calm listening to the surgeon

The surgeon would make a vertical incision from the middle of my ribs to my pubic bone. In a procedure called component separation, she would cut muscles from my obliques on both sides, stretch them to build a new abdominal wall. Then, to secure the newly stitched wall,  attach a mesh all the way from my ribs to my hip bones before sealing me up. Below is a diagram.

Initially when I woke up, the pain was much more intense than what I thought it would be. So they drugged me up with Morphine, a few other narcotics that put me to sleep, but that was all they did. I was still in pain. They wanted me to ambulate, but I was in so much pain. When they allowed me to eat, I couldn’t because I was in too much pain. On top of that I had a fever for about 2 days.   On the 3^rd morning after my surgery, I attempted to give myself a sponge bath because I was tired of having people wipe my ass, and bathe me. I needed a new surgical binder that wasn’t stained with crusty blood. The pain was so excruciating that when my aunt (who thank God was also my nurse for the day) knocked on the bathroom door to ask how I was doing, I broke down into weak cry., a whimper. Boy, was it humbling to have my aunt, who used to change my diapers, have to bathe me…everywhere. 

She handled business and then an X-ray was ordered, and an enema… perhaps I was constipated (which is worsened by narcotics). While she set up my bed, I eased into the hospital chair. Suddenly I became overwhelmed with nausea and began violently vomiting bile. My aunt had to hold the bag, so I could support my stomach as it was jerking involuntarily.  Horrific pain. Apparently, I had an ileus, or what they call bowel obstruction. A serious one. It appears my digestive system had never fully awakened after surgery, which explained the reason oral medications were ineffective; they were not being digested. Everything was stuck in my stomach and esophagus. It made sense, I was swollen everywhere and my skin was clammy and discolored.

   Within the next 10 minutes my aunt was holding me down as another nurse stuffed a tube up my nose and into my throat while I gagged and cried. For the next 24 hours, the NG tube would pump my digestive track of everything and my stay at the hospital would be extended while my digestive functioning was observed. Which meant 24 hours of nothing, followed by 24 hours of liquids, and 24 hours on solids for a total of 3 more days.

Recovery at home was equally tough the first few days. Last time I had major surgery I had a live in partner who could help me. This time on I was my own with bathing (2 weeks before I took a real shower), letting things fall to the floor because I couldn’t pick them up, and the constant pinching of drains.  It was sleepless nights, and spells of helplessness The worst part was eating, because the peristalsis was excruciating, I felt like I could feel every bite of food work its way through my body for at least 2 days. 

check out the hernia through my dress.

                                   side angle of the hernia before surgery

              I found it so much more difficult to focus on the positive this time around. Yes the hernia was gone, but at that time it meant a shift in the type of pain I experienced. Because I feared any further intestinal problems, I rejected narcotics for pain management and stuck with ibuprofen and Tylenol. Ouch!

           

Over the last four months my body has been amazing all over again in regaining its strength and stamina. I’ve swallowed tears of frustration when I returned to my workout and couldn’t do anything, or I was so exhausted from jumping back into work, I’d get nauseous.  For a year and half I tried to cover this massive hernia, but now I’m trying to disguise my belly which now only looks about 4 months pregnant. It still feels tight and sore on extra busy days at work, and my ab power is severely diminished but I’m forcing myself to remain patient and remember that in due time, the swelling will decrease, the strength will increase, and while I’ll never be the same, I’ll feel confident in my physical appearance and power again. And if I’m lucky, one of these days I’ll see the lesson in all of this. I thought I mastered body gratitude, life gratitude, patience? Well, it's not mastered, but I've had many lessons. What do you think is the possible lesson? I Wonder.

Left top- hernia, Right top-1 week post op, bottom left- 2 weeks post op, bottom right- 2 months post op

Body Image Revisited

The body image saga continues.  If you’ve read my memoir then you know that starting as early as 11 years old I struggled with body image.  I thought I was had finally conquered it in mid twenties, even if I was close to 250 pounds. I mean I deemed myself the Queen of Self -Esteem! For about 10 years after that, I was in a really good place. I had mastered posing so that the camera hit all of the right angles. I had come to love all of my flaws, finally accepting my lumps and bumps, and really focusing on what I loved about my body. Then 2015 came and I’d have to come to accept a new body. Just as I’m starting accept the fact that I have no feeling in my breasts (which I have now decided to call NOOBS -new boobs), and get happy that the foot and a half long scar across my abdomen is fading,  my incisional hernia enlarges and that’s ALL am able to see. I’m cognizant  of it all day long. Aside from the extreme physical discomfort, I find myself double checking mirrors and buying shirts that disguise the massive bulge protruding from my right lower quadrant. I haven't been this self-conscious when getting dressed in so long, it feels awkward. But it’s really because I do in fact feel self-conscious. And why? I  have yet to understand why this insecurity has crept back in my psyche. I mean before the surgery I gained like 50 pounds, and after the surgery I walked around for 6 months with no nipples or areolas? Why am I tripping?  I had no answer, so last week I decided to get back in the gym ( I have to keep it extremely light until and even months after my next surgery). It made a world of difference, because after one session, I was reminded of just how powerful and amazing my body is. Each chest press made me feel more and appreciative of my body and its journey. It reminded me that this shit is temporary and aesthetic. What matters is keeping it healthy for its next healing challenge! Here we go!

Jumping the Gun: More Fipple problems

It's almost six o'clock on a Saturday and I've just been able to peel myself off the couch...kinda. I was so excited to finally see my new fipples, which look like they will be great once all these stitches dissolve. This was exactly one week after my surgery. My surgeon removed all of the bandages and instructed me to lubricate all of my wounds.

With bandages...don't they look perky? Relax they'll drop some later, but they are smaller

He used skin from underneath my foob to create the fipple

Here I am all oiled up. Can you imagine wearing a bra over this?

He forewarned me that it would be tricky finding the right bra for now, and for some reason, I didn't quite absorb that until I tried to actually wear one. On one hand I was told not to wear anything that could flatten out my new nipples, like the sports bras and  tanks with built- in bras I've grown to love. Then with my lovely  stitches in the uncomfortable spot underneath my breast, no underwires, or hell, any kind of bra. With my green light to go back to work I surely couldn't show up with my headlights beaming. So day one I wore a cupped Victoria's  Secret bra to allow room for my fipples. Unfortunately my day was filled with anguish. Firstly, I was back to driving and turns and backing out hurt all over. Secondly, that expensive ass bra sucked! It cut right into my sore spots, and it wasn't as supportive as my surgical tube top, so every time I bent down...ouch.
 After work I did what he had suggested in the first place, I got some nipples protector cups; the same ones for breast feeding mothers. i wore those with my go to sports bra and it was a better. However, by the end of the day, I was sore from the nipples protectors. Those things are not meant to be worn for 9 hours! So here I am exhausted from only 3 days of work, and uncomfortable unless I'm laying with pillows propped under my arms. It's surprising and disappointing to me
because week one went so well with the bandages and the tube top. No bra= no support, bra= support but flat nipples, or support but pain to my stitches. So I'm laying here for this reason and because  I'm tired. It I may even be slightly depressed; not at my fipples, because they are awesome, but because I'm not 100% and everyone that knows me, know I hate to slow down. I just have to remember that this is temporary, and by summer I'll be more back to normal. Damn Patience!

Happy Foob Year!

5 days later, here I am wearing the most hideous surgical garment ever. I mean the last ones were ugly, but they were all white and  made no attempt to be cute. However uncomfortable and unattractive this contraption, it does what it’s supposed to, which is support my newly lifted foobs and sewn on fipples.

 I have to say this surgery was a breeze compared to the last two. Aside from the fact that we had our first snow/sleet/ice storm the night before, which caused my surgeon to arrive 15 minutes late, everything went as planned. At 7:45am the anesthesiologist injected my IV with the feel good stuff. At 11:10 I was awakened by a nurse placing pillows under each side of my arms. She told me I could keep sleeping, which I did for another hour. Then I was ready to get up and go. My fiancée came for me, and other than feeling light headed and dizzy, I felt relieved; no more surgeries, I did it. I was home in time to watch Judge Mathis, which I eventually fell asleep on.  With the help of some narcotics, I slept on and off the rest of the day.  The next day, I was still groggy and my only discomfort were the stitches were underneath the foobs. It felt tight, and itchy, but nothing unbearable.  Because I wanted to celebrate with champagne on New Year’s Eve, I was hell bent on not taking any pain meds at all. So I sucked it up. My reward was spending my holiday surrounded by family, and wearing scarves and sweaters to cover up the bulky surgical tube top. I tried to go the whole week with only sponge baths, but once 2016 came around, I gave in, being sure not to wet my bandages. In two more days I will get to see an updated version of my foobs and fipples. 

At this point I’m not even excited about it because I’ve just become more and more accepting of my body no matter what it looks like. Besides, it’s amazing, I mean look at all it’s been through and it continues to heal and allow me to do whatever I set out to!

After the Storm:Foobs & Fipples

I’m beginning to feel like a pro. Wash all the clothes, clean the house, take out button up and zip up clothes (because I won’t be able to reach over my head), pick up my toddler all day (because I won’t be able to do that again for a few weeks) and prep him for mommy recovery again (he is not happy about it and threatened to punch the doctor’s for giving me boo-boos). Before I take my shower tonight I’ll take one last picture of my foobs before I get my fipples. The way my oncology gyno explained it is that he will pretty much do origami with my scar tissue and create semi erect fipples. In order for them to be even, my surgeon will do a freast lift, which means now I will be EXTRA perky.

I know it seems painful, But I have no sensation in my freasts

 Still it will be a couple of more months before Toya the Remix is complete and I finally get my areolas tattooed.  As prepared as I feel, because of course I’ve done the research, I still get nervous about going under. And while I know the pain will be minimal compared to last time, I hate pain and pain meds and being limited physically.  I know it’s temporary. I know it’s worth it, but I still get nervous. Who wouldn’t? And I’m still looking forward to spring when I will be healed much more internally so that I really get back in to my fitness. I mean what do I look like with a flat stomach, perky foobs, but jiggly arms and a flat ass??? And no, this is not me putting myself down. I  have loved my body through all its stages, but since I found out I need more stomach fat in order to have these nice breasts, I had to go through some major changes. Prior to all of this I was killing it at boot camp. I felt strong, powerful, I had some cut in my arms and my backside was getting good and round from thousands of squats. I tried it few weeks ago and I was filled with adrenaline as I pounded the medicine ball to the floor, and did jump squats and planks (I used to do 1 minute, now it’s like 15 seconds). But two days later I was almost incapacitated at work, abs were sore, the muscles underneath my boobs were sore, okay no sore, straight hurting. I had to quit. Okay, not quit, but postpone until 2016.

 I know I’m powerful, I’m still here. But I cannot wait to get back to being the weight lifting beast I was becoming last year around this time!

Storm- a friend gave me a little statue  of her to help me weather "The Storm"

 But wait is exactly what I have to do.  Tomorrow I check in at 6:00 am signing off. Later folks

From FREASTS to FOOBS: Part III: Recovery

WARNING: THIS POST CONTAINS GRAPHIC MEDICAL IMAGES and  one sexy image!

As my aunt wheeled me down the hospital corridor, I was mixed with emotions. Happy to be out the hospital… away from the substandard food, the constant interruptions from folks trying to get vitals, and from the inconsistency of great nurses and awful nurses. I would get to be in my house,  around my children, and the fact that I was being discharged meant that I was well on my way to recovery. But I was apprehensive, what if something went wrong? I had learned how to navigate my way from my hospital bed to the bathroom,  but  once again all of the research I had done indicated that I would have a hard time at home. It was recommended I get a shower chair, a raised toilet seat, and that I sleep in a recliner since I couldn’t fully stretch out.  (The recliner was and still is my best friend).

 The trip home left me depleted. With the help of my fiancé I got myself adjusted on the recliner sofa in the living room. That night both he and my toddler slept on the couch next to me. Every four hours my fiancé woke me up to take my meds so I wouldn’t have to be completely exposed to the pain. The next day, turned into two weeks of the monotony. Sleeping and awake at odd hours of the day and night; visits from my aunt angels, cousins, and good friends; meals being cooked and delivered; drains being emptied.

Oh the dreaded drains. The absolute worst part of this whole experience. Two hanging from each side of my upper rib to collect fluid from my Freasts (fake breasts) or what I now call FOOBS(fake boobs) and two hanging from either side of my hip to collect fluid from my abs. They had to be emptied and the disgusting fluid from them measured and documented.  Because of this, I wouldn’t need a shower chair, because I only took sponge baths. And I got to wear cotton old lady button up robes. Thankfully I had my aunt, and a very good friend who stepped in when the visiting nurse couldn’t.

courtesy of breastcancer.org

With all that was going on, there were some amazing facets of my recovery. First of all, I didn’t need that raised toilet seat. Turns out all those years of Pilates helped me build an awesomely strong core underneath that once thick layer of belly fat. It was much easier than anticipated. Secondly, I wasn’t totally freaked out by what I saw when I looked in the mirror. I mean, my foobies had no nipples, but still it wasn’t nearly as traumatic as I thought it would be. I think other people were more uncomfortable than me.

It was during this recovery I got to see who my real friends were. I was surprised by the number of people who reached out to me in some way, and disheartened by those who I expected would but didn’t. Still with so much love and support around me, I couldn’t dwell on it for more than moments at a time.

Each day I was more and more amazed at what my body could do, how it healed itself, regenerating cells and nerves and FOOBS!   

Perhaps the best part of recovery was 19 days after surgery when with the doctor’s clearance I was able to get dolled up and receive my 100 women of Color award for my work.  Not only did I receive an award alongside 99 other phenomenal women, I also  got my own holiday in my hometown! Sure I had to tiptoe around, sit while everyone else was socializing and I was exhausted after the 4 hour event, but  when they called my name, I strutted across that stage like my foobs weren’t still swollen, and my abs weren’t sore. Because that’s what you do once you dub yourself the Queen of Self-Esteem!

19 days post op... pretty sexy considering all that was going on underneath

The Journey doesn’t end here. Stay tuned as I continue on to the next stage of reconstruction on December 28^th. I'll get my Fipples 

 (fake nipples)

FREASTS: The Right Choice...Part II

When the alarm clock went off at 5:15am, I had only napped about an hour.  Although I was exhausted I was in good spirits. I had made peace with my decision and the changes it would bring. But I did tear up when I kissed my toddler as he slept, praying I would see him again. I went in alone, which was what I needed. As I lay in pre op, I meditated and focused on coming out of surgery and healing like a rock star. I was so calm as I changed into a gown, emptied my bladder, got weighed one last time (Whoa) and let them begin to hook me up to all of the machinery. I answered the same questions over and over about allergies, last time I ate, etc. Then my handsome (in a quirky way) plastic surgeon came in and marked up my body. When I told him how much I’d miss my belly button, he told me I would still have the same belly button, it would just be moved. This gave me comfort.  
Then the anesthesiologist  came in, explaining that I would have an a an epidural that would numb my chest muscles so that I wouldn’t feel pain when I awoke.  I leaned over on a pillow; the nurse held my hand, and the needle in my lower back was the last thing I remembered. 
This is what was happening while I was completely unaware:

 My oncologist would cut and remove both of my breasts, removing the fat, the muscle, mammary glands and all. Her reputation is that she is thorough and would scrape away all of the breast tissue. Like all. Next, my brilliant plastic surgeon and his team would begin what is called DIEP flap reconstruction.According to BreastCancer.org, DIEP stands for the deep inferior epigastric perforator artery, which runs through the abdomen.  In other words, they would cut a large portion of skin and fat from my lower stomach, and then transplant them to my chest wall in the shape of breasts. Crazy, right?  But not simple. It involves microsurgery, reattaching the veins and arteries one at a time.

This is a diagram showing one breast. I had both breasts removed and reconstructed

For my surgical team, it took 15 hours total.

 This meant that while my family thought I’d be done by 8 or 9pm, I was not out of surgery until after 1am (Tuesday).

            When I opened my eyes, my two aunts were there like angels…

Gloria(L) and Saundra(R) my mother's sisters

 because my vision was blurry. I was distracted by the breathing tube that was still in my throat. Panic set in, medical staff tried to calm me, but I kept trying to speak. I could hear myself saying, I can’t breathe, I was gagging telling them to please take it. When they didn't listen, I tried to remove it. I felt people grabbing my arms and I heard “Sedate Her” , which they must have because the next thing I remember  (12 hours later apparently)  I was waking up with straps on my wrists. But at least the breathing tube was gone. What I didn’t understand in my panic was that they had to keep it in because, just like with any transplant, there was the risk that my chest wall wouldn’t take its new FREASTS. If the tissue didn’t stay alive, they would have to take me back into the OR and remove those. Not to mention, they needed to make sure my throat wasn’t too swollen and that I could breathe on my own. Which was kinda important.This is why I was in the ICU, being checked in half hour intervals. I was under heavy IV pain meds (thank God) so the first 24 to 36 hours were a blur of nurses brushing my teeth, wiping my dry cracked lips and putting petroleum jelly on them, cold cloths on my forehead, I remember them being so great, and feeling comforted despite the fact that I could only open my eyes seconds at a time, and my voice was weak. Unfortunately, I also had a fever of 102 and they worked vigorously to drop it down with IV medication. What I also was unaware of was that they were trying to keep me awake and get my body’s systems going. One of the nurses had me verbally complete the health care proxy form and sign off on it.  I had no concept of time; I just remember when they told me it was safe to move me out of ICU and into a regular room because my FREASTS were still viable. As they wheeled me on a stretcher, I passed a blond haired, fairly young, handsome doc. He introduced himself (I can’t remember his name) and said that he was on the surgical team. He told me I was brave and bad ass for my decision and that I made the right choice.

          According to my family, I was out of ICU by mid-morning on Wednesday and into my room. It was there I remembered that I was going to be a rock star in terms of doing what I needed to heal quickly. I asked that the catheter be removed so I could go to the bathroom on my own. (Why not, I was on morphine?).  It was so weird. I didn’t feel pain, I just felt stiff and tight as I walked in  cave man like baby steps, escorted by a nurse. I still had a low grade fever, so they were constantly checking in on me; they still needed to check the FREASTS every 1 to 2 hours.  I remember it was hard for them to find that swooshing sound in my left breast, so that had to put it in a special spot.

They put on a surgical bra, which I would grow to hate over the next 3 weeks, which matched my waist binder, which I’d grow to love and hate. They wanted me to sit in a chair. I did, and I slept there. But I also walked the hall, ambulating like it was suggested. I was determined to be model patient.

 The next few days would include daily visits from my angel aunts, my fiancé, and my uncle, and special visits from cousins, my dad, my brother, my oldest son, and my sister.   It was my sister and one of my closest friends who took a lesson in how to change my drains (we’ll discuss those in part 3).  I had my friend take this picture of me:

I wanted to document this journey, which would be hard because apparently I had multiple conversations under the influence of drugs that I don’t remember. It was a blur of Law and Order SVU reruns in the TV, multiple sleep interruptions, wraps on my legs to prevent blood clots, breathing into devices to restore my lungs, picking out my meals, taking sponge baths. Great nurses and PCAs, and awful nurses. Looking at the clock, not sure if it was 4am or pm.

The day my fiancé finally brought my toddler to come see me, it all came full circle. He was soooo happy to see me. At one point I glanced up at my wall chart with all of the nurse’s names and the date. It was Friday, September 4th. The anniversary of my mother’s transition. I looked at my toddler, I was about his age when I would go see my mother at the hospital, and like I saved my dessert for him, she’d save her dessert for my sister and I. It was mind-blowing to me, and I was rushed with emotion.  I was sad for the little girl in me who had no idea that one of the times she left the hospital would be the last time she saw her mother. I felt sad as a mother, for my mother, who at 23 knew she wouldn’t be around to see her kids, and that one of those hospital visits would be that last time she’d hug her little girls.  But I felt grateful that because of modern medicine, I would be there. I would be there for my toddler, and despite missing me dearly, he’d see me again. That doctor was right; I’d made the right choice.

My oldest son

My 4 year old

FREASTS: The last night Part I

Here I am at the 6 week mark for my surgery, and the whole experience has been surreal. Rewind to the last week of August, which was pure chaos for me. It was the first week of professional development for educators and I had to be a presenter. While my summer was great I was feeling extra fat because I needed to put extra meat on my stomach for the surgery and well, I did. Let’s be clear, you cannot spot gain  weight just like you cannot spot lose, so I was feeling plump in all areas. My breasts were the largest they'd
been in a long time and my weight was close to its highest. Therefore I only had like 2 bras I could fit and a few maxi dresses. I was highly emotional all of the time. I was like a pregnant mother nesting, preparing my house for the week would be in the hospital, preparing my toddler for  mommy being "at the doctor’s" for days and him not being able to climb on mommy or mommy not being able to pick him up when I came back. I was decorating a classroom and getting lesson plans ready for my extended absence  (8 to 12 weeks). This meant staying after school for 2 to 3 hours daily while all of the other teachers rushed off to enjoy their last days of summer. I was preparing for a surgery that would not only change my body, but would change my life! The week was flying by as I felt like there wasn't enough time for to complete my to-do list. My surgery was scheduled for August 31, the first day of school for students. I would not be there,  instead I'd be on an operating table being sliced and diced.

  It would be a 10 to 12 hour surgery, I was nervous about not coming out of it alive, I was anxious about how I would react to my “Toya the Remix”. What if I hated my freasts (fake breasts)? What if I looked at this new pair without nipples and with big scars and I panicked?  What if they were lopsided, or my abdominal scar was atrocious? I know supposedly the internet is not your friend when it comes to medicine but I did extensive research, sometimes at 2 and 3am, looking at other people’s scars, finding recovery tips, and while it helped me prepare my home, it definitely put my anxiety at an all-time high. I couldn’t sleep at night. I almost had panic attack thinking about going under and the type of pain I’d have to endure. 

 The only thing that took my attention away was the deadline for my comprehensive exam for my doctoral degree.  I couldn't continue with my dissertation until I passed. It was due September 8, no exceptions, no excuses, even medical (Please believe me, I tried). It was more than 60 pages long. And I would have to complete it a week early if I wanted to succeed.

 Fast forward to the night of Sunday, August 30^th ...the longest night ever. My hospital bag was packed, the house was spotless, everyone was asleep and I had done more research on the procedure than I needed. I had two Reiki sessions and had been put on many prayer lists, so in terms of the actual procedure, I was felt relaxed and prepared. There was only one thing weighing heavily on my mind.I knew I had to finish the exam before I went under because I knew there was no way I’d be able to write coherently once I came out of surgery. As I made edits, my eyes were strained, I wasn't sure if I was thinking clearly. I was hungry as hell, but doing the mandatory fasting, not even water.I had a toddler meltdown at about 1:00am thinking, I should just give up, I should just wait until next semester and retake it, even if it meant more loan money. I wanted my peace of mind; I needed my peace of mind. And then I heard this little voice, scratch that, a big voice tells …  BULL SH*T! You are Brenda’s Child, there’s no giving up! You busted your ass on this for a month and now you wanna quit!?

 The voice sounded a lot like Tom Hanks in a League of Their Own. But instead of yelling “There’s no crying in baseball” he was saying “There’s no giving up. People are counting on you. You aren’t a hypocrite are you? Follow Through.”  

So I did. I finished my paper at 3:34 am. I still didn't hand it in. I closed my laptop, went into the bathroom and looked at my for the last time. I felt my erect nipples for the last time, realizing I'd never know what that would be like again.

 I took a selfie of my extra-large, gravity-stricken breasts and my stomach, that since my first son was born 18 years ago, had looked like two large lips frowning.  I looked at my red sleepy eyes and then I shrugged my shoulders before I took what would be my last shower for 3weeks. Screw it, I’d sleep under anesthesia. I was going to let everything go and clear my mind for the surgery I had to report to at 5:45am.  I was signing off. 

Bittersweet Choices

   

     Even though I’m consumed with
 my dissertation, I am also

 preparing for the biggest, most complex surgery of my life; my mind and spirit are all over the place.  First off, I am beyond grateful that because of technology I am able to take steps to prevent the breast cancer that took my mother away at such a young age. But when I look at my toddler, I’m sad because my sister and I were so close to his age when she passed away. My baby is 3 ½ and he comes looking for me in the middle of the night. I couldn’t imagine not being there for him, and knowing that I was dying and wouldn’t get to see him grow up. My oldest son just graduated high school, and last week I took him to get his college ID. My mom missed that. My grandmother missed that. And so many other things in between. So lately I’m extra attached to both of them (even though the teen is totally not feeling mom). 

    Then I feel blessed again because it was my choice to wear 

my fabulous wigs, and to chop all my hair off, and it wasn’t the case for my grandmother. I remember coming home from school one day and she was sitting on the couch with a pile of hair in her lap. She explained to me that it was an effect of her chemo. Looking back, her wigs were in no way as beautiful as her once long dark hair.  And when it grew back, it looked a lot like mine does now, just gray. I have options, and it’s amazing, and it’s still scary and bittersweet.

      Then there's my mortality, something I struggled with so

much as a young person, so much that I refused to wear bandanna scarves because I remember my mother wearing them while she was in treatment. 

Now that older, and I’ve outlived my mother, it’s coming into a play again.  I’m going under the knife for 10 to 12 hours. YIKES!!! I’ll be in ICU;  in the hospital away from my baby for 5 days. I’ll have to look at my breasts without nipples or areolas for about 6 months. I will have a huge horizontal scar across my abdomen; I’ll try best to look at that with gratitude because I have a choice. That choice doesn’t involve radiation, chemo, or not being here to see my sons grow and evolve. I have a choice, but it doesn't mean I'm still not apprehensive.

Brave or Afraid?

As I watch Angelina Jolie make the news once again for her “heroic” decision to undergo another surgery to eliminate her ovarian cancer, I think…it’s a big deal, but it’s not a “big” deal. What I mean by this is that  people do what  Angelina did all of the time  but no one pays attention because, well they aren't a sex symbol, movie star, or poster woman for  a thousand and one humanitarian organizations. I know because the women in my family have been doing it for over 10 years, including myself.

            My mother died of breast cancer at only 23 years old. Her mother died of ovarian cancer at 57. My mother’s sister also died of ovarian cancer before age 60. Of my mother’s three remaining sisters, two have had their ovaries removed upon turning 40, and one also opted to have a preventative double mastectomy with reconstruction.

            According to one study, only 1/3 of African American women who meet the criteria for genetic testing are actually referred. I was only referred because I insisted  testing for the BRCA1 and BRCA2 gene mutations. If positive, I would have had up to a 60% of developing ovarian cancer in my lifetime and up to an 85% chance of developing breast cancer. After receiving my results in the fall of 2014, I elected to also have my ovaries and fallopian tubes removed last month at age 36. Within the next year, I too will have a double mastectomy with reconstruction.

            I didn't once look at it as brave, but almost as necessary. While my results were negative, there was variant, which means there was a mutation that could be linked to cancer, but that it hasn't been determined yet. However, recent research has indicated that there are more genetic mutations being discovered that could be linked to cancers. As African-American women specifically, we develop breast cancer at an earlier age and it tends to be more aggressive. So while I’m no world famous icon, I am a member of a medically under served population who has experienced the trauma of watching loved ones suffer from the disease. Therefore, I choose to act.  Being a career mom and dream chaser, surgery is scary; recovery has been and will be difficult. What’s more unbearable at this moment in my life, is hearing those dreaded words, “You have cancer.” That doesn't make me a hero, it makes me afraid. 

Read the full version here http://www.forharriet.com/2015/04/why-i-chose-to-fight-cancer-by-removing.html