Good bye 2017

I have dreaded writing my final post this year, something I have never done before. Usually, I am excited to review all the wonderful things I have experienced and accomplished in 12 months, but 2017 was the most overwhelming year I have had in a long time. I mean it was so challenging, I allowed those difficulties to overshadow the good, take me out of my gratitude mindset. One was my hernia surgery, which I thought would happen in late winter or early spring, but instead, it was postponed, as was my recovery. In my mind I was going to have the surgery, heal up quickly, and be snatched, quite frankly. Instead, I am still slightly swollen in my abdomen and I have no ab muscles. Most of my summer was on bed rest.  Much like after previous surgeries, I know that in due time I will get my strength back, but still, it frustrating as hell.

Secondly, my number one goal of 2017 was complete my dissertation and finally become Dr. Boz.  Well, technically I did finish my dissertation. However, due to some changes within the school, approval on so many levels has been postponed, and there is nothing I can do except file a grievance and pay my costly tuition.  This has been devastating. They were things that happened within the immediate family that rattled me. Not to go into so many details, but there was another breast cancer diagnosis, my adult son moved back home, and my grandson’s mother did not care about him having a relationship with anyone on my side of the family. It breaks my heart into little pieces everyday that he lives so close by and I can count on my hands the number of times I have seen him. How do shape all of this nonsense into a lesson and shape it positively?

Here it goes:

 First, upon heavy meditation, I’ve been rushing all my life. Subconsciously, and somewhat consciously, I have always tried to beat the clock because my experience with the death of so many women in my family created fear about the brevity of life. I thought I had dealt with this, and come to terms with the fact that I have taken steps to extend my life and I will die an old lady. But this year I have realized I have not. I let the idea that I must rush and get things done, accomplish goals before it is too late. The crazy thing is, I only rush to cross items off a list. I don’t bask in my accomplishments, or focus on experiences instead of just accomplishments. Because of this, two of my major changes for 2018 will be:

A.      To have more fun! To live honey! More experiences and traveling

This year I

B.      Celebrate Every F**king Thing. Because I honestly do not celebrate myself enough. The Queen of Self-esteem doesn’t celebrate all she’s overcome!  I have been going and going so long that I am no longer mindful of just how amazing it is.

C.        

1.       I finished my dissertation. I did. I finished 5 long ass Chapters. A year of literal sweat and tears (no blood.)

2.       I created  #SistasAre Dope journal and T-shirt

3.       Published my first Children’ s book

4.       Gave a kickass commencement speech

5.       Graduated from a leadership program

6.       Inspired crowds with spoken word  and got paid for it

Not bad. Not bad at all. And the crazy thing is, I really didn’t take the time to pat myself on the back.

 And you know what else was awesome about this year?

1.       The breast cancer diagnosis meant involved no chemo and was a stage 0. She is cancer free

2.       I was there when my grandson was born and watch him for his first few minutes of life. I got to see my son, become a father.

3.       I was there to see people I love in awards, like my father and my sista friend

4.       I attended the New York red carpet movie premiere of my sista friend

5.       I switched to a position at work that is way less stressful, and I have a better leader

6.       I had the support of family and friends through the dissertation writing, the recovery from surgery and at my book release

7.       I did an amazing professional photo shoot

8.       Welcomed a baby girl in the family whose life I will be a part of

9.       Tried 3 new activities

10. I have discovered estrogen in hormone replacement therapy

2017 wasn't so horrible in hindsight. It just forced me to face some things I had pushed deep down, and it is preparing me to reap (and enjoy) the rewards of my hard work. 2018, I will work smarter not harder because there is some fun not be had!

1 year later

It’s been a year (actually a little more than a year) since Toya

 the remix. I feel like I died and was born again on that day 

because my life has never been the same. Even when I  look 

at pictures of me I think "that was before the surgery."

First of all, I’m so much more appreciative of the brevity of life and the idea that at any second, it can all be over. So I’m all about living in the moment, taking chances, and not dealing with bullshit.  If a person, place or thing doesn’t bring me joy, then why involve myself?  Secondly, my body acceptance level is at an all-time high, I appreciate my body’s ability to repair itself.  During my first week home, I remembering   feeling like   I would never ever recover, never be strong again.   Mentally I am so much stronger, physically,   I’m still workin on it.  Each day gets better.   There are still days in which I feel a sting in my left  breast from scar tissue if I move the wrong way, I still have weakened muscles  in my abdominal wall which cause a hideous bulge to the lower right. If I stand too long, walk to long, it sticks out and hardens. It’s not a hernia, but it resembles one. It will be re-examined   when I go for my follow up next month. In the meantime, I’m celebrating my health by completing a 5k mud race for the American Cancer Society this weekend.

 If I have to complain, which I try not to, I will say that I feel

 somewhat ASEXUAL. Menopause topped with a complete 

of sensation in my noobies ( new boobs)  has my libido 

NONEXISTENT.  When I’m  dressed, I feel sexy. Even when I 

look at my body naked, aesthetically, I like what I see, but it’s 

the FEELING …the feeling of being a sexual being that is 

absent. 

THIS IS WHERE IT GETS TMI: how does one go 

about becoming aroused when they are consumed with the 

thought of vaginal dryness (even though lubricant is 

available) and the fact that what used to turn you on (nipple 

stimulation) is no longer an option? This is my current 

struggle. This is why I’m just not into sex with myself or 

anyone for that matter. At least not right now.  

Dance with My Mother

I’d be dishonest with the world and myself if I didn’t admit that occasionally I feel a sense of envy and hurt when I see the relationship some of my closest friends have with their mothers. They party together, gamble to together, or live across the street from each other. I can’t help but think that if my mother was alive, she’d dance with me at family parties; I’ve been told all my life that she could cut a mean rug!

Sometimes I wish that I could crawl up in the bed with her like I did when I was three and be vulnerable with her. I’m come along accepting this loss, using my poetry to deal with my emotions, honoring her with my pen name and a tattoo, and having a zest for life so I can live for both of us. Anyone who knows me, knows that I believe in spirit and that much like water, we humans only change form, but our spirits, our energy never really dies. I know her spirit is present, and I get little signs every now and then, but sometimes I just want that physical presence, arms to hold, neck to smell in an embrace. I even get the bigger picture, I wouldn’t be who I am if I hadn’t suffered the loss.  I wouldn’t have ever picked up a pen to process my feelings and written words that I can truly say have inspired others to write, reflect, or do better. I wouldn’t be the type of teacher or mentor who is on call 24/7 for babies. I wouldn’t have this relentless desire to inspire women and teens to take power over their futures instead of being consumed by the past. I know her time was limited, and her purpose was fulfilled in those 23 years (according to two different mediums and my own intuition), but sometimes it doesn’t make it any easier, and sometimes I become overwhelmed with emotions and tears fill up my eyes and I let out a broken cry. This is the reality. I never want to sound ungrateful, I’ve been more than blessed with an enormous family, surrounded by love and mother like figures, something I’m sure other people wish they had.  The older I get the more I come to understand the bigger picture, which is why 90% of the time, I can tell my story to a crowd without even a lump in my throat, but other times, l find myself wondering what would certain moments be like if she was physically there instead of just mentally. 

My mother, looking exhausted after giving me a bath

Jumping the Gun: More Fipple problems

It's almost six o'clock on a Saturday and I've just been able to peel myself off the couch...kinda. I was so excited to finally see my new fipples, which look like they will be great once all these stitches dissolve. This was exactly one week after my surgery. My surgeon removed all of the bandages and instructed me to lubricate all of my wounds.

With bandages...don't they look perky? Relax they'll drop some later, but they are smaller

He used skin from underneath my foob to create the fipple

Here I am all oiled up. Can you imagine wearing a bra over this?

He forewarned me that it would be tricky finding the right bra for now, and for some reason, I didn't quite absorb that until I tried to actually wear one. On one hand I was told not to wear anything that could flatten out my new nipples, like the sports bras and  tanks with built- in bras I've grown to love. Then with my lovely  stitches in the uncomfortable spot underneath my breast, no underwires, or hell, any kind of bra. With my green light to go back to work I surely couldn't show up with my headlights beaming. So day one I wore a cupped Victoria's  Secret bra to allow room for my fipples. Unfortunately my day was filled with anguish. Firstly, I was back to driving and turns and backing out hurt all over. Secondly, that expensive ass bra sucked! It cut right into my sore spots, and it wasn't as supportive as my surgical tube top, so every time I bent down...ouch.
 After work I did what he had suggested in the first place, I got some nipples protector cups; the same ones for breast feeding mothers. i wore those with my go to sports bra and it was a better. However, by the end of the day, I was sore from the nipples protectors. Those things are not meant to be worn for 9 hours! So here I am exhausted from only 3 days of work, and uncomfortable unless I'm laying with pillows propped under my arms. It's surprising and disappointing to me
because week one went so well with the bandages and the tube top. No bra= no support, bra= support but flat nipples, or support but pain to my stitches. So I'm laying here for this reason and because  I'm tired. It I may even be slightly depressed; not at my fipples, because they are awesome, but because I'm not 100% and everyone that knows me, know I hate to slow down. I just have to remember that this is temporary, and by summer I'll be more back to normal. Damn Patience!

Happy Foob Year!

5 days later, here I am wearing the most hideous surgical garment ever. I mean the last ones were ugly, but they were all white and  made no attempt to be cute. However uncomfortable and unattractive this contraption, it does what it’s supposed to, which is support my newly lifted foobs and sewn on fipples.

 I have to say this surgery was a breeze compared to the last two. Aside from the fact that we had our first snow/sleet/ice storm the night before, which caused my surgeon to arrive 15 minutes late, everything went as planned. At 7:45am the anesthesiologist injected my IV with the feel good stuff. At 11:10 I was awakened by a nurse placing pillows under each side of my arms. She told me I could keep sleeping, which I did for another hour. Then I was ready to get up and go. My fiancée came for me, and other than feeling light headed and dizzy, I felt relieved; no more surgeries, I did it. I was home in time to watch Judge Mathis, which I eventually fell asleep on.  With the help of some narcotics, I slept on and off the rest of the day.  The next day, I was still groggy and my only discomfort were the stitches were underneath the foobs. It felt tight, and itchy, but nothing unbearable.  Because I wanted to celebrate with champagne on New Year’s Eve, I was hell bent on not taking any pain meds at all. So I sucked it up. My reward was spending my holiday surrounded by family, and wearing scarves and sweaters to cover up the bulky surgical tube top. I tried to go the whole week with only sponge baths, but once 2016 came around, I gave in, being sure not to wet my bandages. In two more days I will get to see an updated version of my foobs and fipples. 

At this point I’m not even excited about it because I’ve just become more and more accepting of my body no matter what it looks like. Besides, it’s amazing, I mean look at all it’s been through and it continues to heal and allow me to do whatever I set out to!

FREASTS: The Right Choice...Part II

When the alarm clock went off at 5:15am, I had only napped about an hour.  Although I was exhausted I was in good spirits. I had made peace with my decision and the changes it would bring. But I did tear up when I kissed my toddler as he slept, praying I would see him again. I went in alone, which was what I needed. As I lay in pre op, I meditated and focused on coming out of surgery and healing like a rock star. I was so calm as I changed into a gown, emptied my bladder, got weighed one last time (Whoa) and let them begin to hook me up to all of the machinery. I answered the same questions over and over about allergies, last time I ate, etc. Then my handsome (in a quirky way) plastic surgeon came in and marked up my body. When I told him how much I’d miss my belly button, he told me I would still have the same belly button, it would just be moved. This gave me comfort.  
Then the anesthesiologist  came in, explaining that I would have an a an epidural that would numb my chest muscles so that I wouldn’t feel pain when I awoke.  I leaned over on a pillow; the nurse held my hand, and the needle in my lower back was the last thing I remembered. 
This is what was happening while I was completely unaware:

 My oncologist would cut and remove both of my breasts, removing the fat, the muscle, mammary glands and all. Her reputation is that she is thorough and would scrape away all of the breast tissue. Like all. Next, my brilliant plastic surgeon and his team would begin what is called DIEP flap reconstruction.According to BreastCancer.org, DIEP stands for the deep inferior epigastric perforator artery, which runs through the abdomen.  In other words, they would cut a large portion of skin and fat from my lower stomach, and then transplant them to my chest wall in the shape of breasts. Crazy, right?  But not simple. It involves microsurgery, reattaching the veins and arteries one at a time.

This is a diagram showing one breast. I had both breasts removed and reconstructed

For my surgical team, it took 15 hours total.

 This meant that while my family thought I’d be done by 8 or 9pm, I was not out of surgery until after 1am (Tuesday).

            When I opened my eyes, my two aunts were there like angels…

Gloria(L) and Saundra(R) my mother's sisters

 because my vision was blurry. I was distracted by the breathing tube that was still in my throat. Panic set in, medical staff tried to calm me, but I kept trying to speak. I could hear myself saying, I can’t breathe, I was gagging telling them to please take it. When they didn't listen, I tried to remove it. I felt people grabbing my arms and I heard “Sedate Her” , which they must have because the next thing I remember  (12 hours later apparently)  I was waking up with straps on my wrists. But at least the breathing tube was gone. What I didn’t understand in my panic was that they had to keep it in because, just like with any transplant, there was the risk that my chest wall wouldn’t take its new FREASTS. If the tissue didn’t stay alive, they would have to take me back into the OR and remove those. Not to mention, they needed to make sure my throat wasn’t too swollen and that I could breathe on my own. Which was kinda important.This is why I was in the ICU, being checked in half hour intervals. I was under heavy IV pain meds (thank God) so the first 24 to 36 hours were a blur of nurses brushing my teeth, wiping my dry cracked lips and putting petroleum jelly on them, cold cloths on my forehead, I remember them being so great, and feeling comforted despite the fact that I could only open my eyes seconds at a time, and my voice was weak. Unfortunately, I also had a fever of 102 and they worked vigorously to drop it down with IV medication. What I also was unaware of was that they were trying to keep me awake and get my body’s systems going. One of the nurses had me verbally complete the health care proxy form and sign off on it.  I had no concept of time; I just remember when they told me it was safe to move me out of ICU and into a regular room because my FREASTS were still viable. As they wheeled me on a stretcher, I passed a blond haired, fairly young, handsome doc. He introduced himself (I can’t remember his name) and said that he was on the surgical team. He told me I was brave and bad ass for my decision and that I made the right choice.

          According to my family, I was out of ICU by mid-morning on Wednesday and into my room. It was there I remembered that I was going to be a rock star in terms of doing what I needed to heal quickly. I asked that the catheter be removed so I could go to the bathroom on my own. (Why not, I was on morphine?).  It was so weird. I didn’t feel pain, I just felt stiff and tight as I walked in  cave man like baby steps, escorted by a nurse. I still had a low grade fever, so they were constantly checking in on me; they still needed to check the FREASTS every 1 to 2 hours.  I remember it was hard for them to find that swooshing sound in my left breast, so that had to put it in a special spot.

They put on a surgical bra, which I would grow to hate over the next 3 weeks, which matched my waist binder, which I’d grow to love and hate. They wanted me to sit in a chair. I did, and I slept there. But I also walked the hall, ambulating like it was suggested. I was determined to be model patient.

 The next few days would include daily visits from my angel aunts, my fiancé, and my uncle, and special visits from cousins, my dad, my brother, my oldest son, and my sister.   It was my sister and one of my closest friends who took a lesson in how to change my drains (we’ll discuss those in part 3).  I had my friend take this picture of me:

I wanted to document this journey, which would be hard because apparently I had multiple conversations under the influence of drugs that I don’t remember. It was a blur of Law and Order SVU reruns in the TV, multiple sleep interruptions, wraps on my legs to prevent blood clots, breathing into devices to restore my lungs, picking out my meals, taking sponge baths. Great nurses and PCAs, and awful nurses. Looking at the clock, not sure if it was 4am or pm.

The day my fiancé finally brought my toddler to come see me, it all came full circle. He was soooo happy to see me. At one point I glanced up at my wall chart with all of the nurse’s names and the date. It was Friday, September 4th. The anniversary of my mother’s transition. I looked at my toddler, I was about his age when I would go see my mother at the hospital, and like I saved my dessert for him, she’d save her dessert for my sister and I. It was mind-blowing to me, and I was rushed with emotion.  I was sad for the little girl in me who had no idea that one of the times she left the hospital would be the last time she saw her mother. I felt sad as a mother, for my mother, who at 23 knew she wouldn’t be around to see her kids, and that one of those hospital visits would be that last time she’d hug her little girls.  But I felt grateful that because of modern medicine, I would be there. I would be there for my toddler, and despite missing me dearly, he’d see me again. That doctor was right; I’d made the right choice.

My oldest son

My 4 year old

FREASTS: The last night Part I

Here I am at the 6 week mark for my surgery, and the whole experience has been surreal. Rewind to the last week of August, which was pure chaos for me. It was the first week of professional development for educators and I had to be a presenter. While my summer was great I was feeling extra fat because I needed to put extra meat on my stomach for the surgery and well, I did. Let’s be clear, you cannot spot gain  weight just like you cannot spot lose, so I was feeling plump in all areas. My breasts were the largest they'd
been in a long time and my weight was close to its highest. Therefore I only had like 2 bras I could fit and a few maxi dresses. I was highly emotional all of the time. I was like a pregnant mother nesting, preparing my house for the week would be in the hospital, preparing my toddler for  mommy being "at the doctor’s" for days and him not being able to climb on mommy or mommy not being able to pick him up when I came back. I was decorating a classroom and getting lesson plans ready for my extended absence  (8 to 12 weeks). This meant staying after school for 2 to 3 hours daily while all of the other teachers rushed off to enjoy their last days of summer. I was preparing for a surgery that would not only change my body, but would change my life! The week was flying by as I felt like there wasn't enough time for to complete my to-do list. My surgery was scheduled for August 31, the first day of school for students. I would not be there,  instead I'd be on an operating table being sliced and diced.

  It would be a 10 to 12 hour surgery, I was nervous about not coming out of it alive, I was anxious about how I would react to my “Toya the Remix”. What if I hated my freasts (fake breasts)? What if I looked at this new pair without nipples and with big scars and I panicked?  What if they were lopsided, or my abdominal scar was atrocious? I know supposedly the internet is not your friend when it comes to medicine but I did extensive research, sometimes at 2 and 3am, looking at other people’s scars, finding recovery tips, and while it helped me prepare my home, it definitely put my anxiety at an all-time high. I couldn’t sleep at night. I almost had panic attack thinking about going under and the type of pain I’d have to endure. 

 The only thing that took my attention away was the deadline for my comprehensive exam for my doctoral degree.  I couldn't continue with my dissertation until I passed. It was due September 8, no exceptions, no excuses, even medical (Please believe me, I tried). It was more than 60 pages long. And I would have to complete it a week early if I wanted to succeed.

 Fast forward to the night of Sunday, August 30^th ...the longest night ever. My hospital bag was packed, the house was spotless, everyone was asleep and I had done more research on the procedure than I needed. I had two Reiki sessions and had been put on many prayer lists, so in terms of the actual procedure, I was felt relaxed and prepared. There was only one thing weighing heavily on my mind.I knew I had to finish the exam before I went under because I knew there was no way I’d be able to write coherently once I came out of surgery. As I made edits, my eyes were strained, I wasn't sure if I was thinking clearly. I was hungry as hell, but doing the mandatory fasting, not even water.I had a toddler meltdown at about 1:00am thinking, I should just give up, I should just wait until next semester and retake it, even if it meant more loan money. I wanted my peace of mind; I needed my peace of mind. And then I heard this little voice, scratch that, a big voice tells …  BULL SH*T! You are Brenda’s Child, there’s no giving up! You busted your ass on this for a month and now you wanna quit!?

 The voice sounded a lot like Tom Hanks in a League of Their Own. But instead of yelling “There’s no crying in baseball” he was saying “There’s no giving up. People are counting on you. You aren’t a hypocrite are you? Follow Through.”  

So I did. I finished my paper at 3:34 am. I still didn't hand it in. I closed my laptop, went into the bathroom and looked at my for the last time. I felt my erect nipples for the last time, realizing I'd never know what that would be like again.

 I took a selfie of my extra-large, gravity-stricken breasts and my stomach, that since my first son was born 18 years ago, had looked like two large lips frowning.  I looked at my red sleepy eyes and then I shrugged my shoulders before I took what would be my last shower for 3weeks. Screw it, I’d sleep under anesthesia. I was going to let everything go and clear my mind for the surgery I had to report to at 5:45am.  I was signing off. 

Brave or Afraid?

As I watch Angelina Jolie make the news once again for her “heroic” decision to undergo another surgery to eliminate her ovarian cancer, I think…it’s a big deal, but it’s not a “big” deal. What I mean by this is that  people do what  Angelina did all of the time  but no one pays attention because, well they aren't a sex symbol, movie star, or poster woman for  a thousand and one humanitarian organizations. I know because the women in my family have been doing it for over 10 years, including myself.

            My mother died of breast cancer at only 23 years old. Her mother died of ovarian cancer at 57. My mother’s sister also died of ovarian cancer before age 60. Of my mother’s three remaining sisters, two have had their ovaries removed upon turning 40, and one also opted to have a preventative double mastectomy with reconstruction.

            According to one study, only 1/3 of African American women who meet the criteria for genetic testing are actually referred. I was only referred because I insisted  testing for the BRCA1 and BRCA2 gene mutations. If positive, I would have had up to a 60% of developing ovarian cancer in my lifetime and up to an 85% chance of developing breast cancer. After receiving my results in the fall of 2014, I elected to also have my ovaries and fallopian tubes removed last month at age 36. Within the next year, I too will have a double mastectomy with reconstruction.

            I didn't once look at it as brave, but almost as necessary. While my results were negative, there was variant, which means there was a mutation that could be linked to cancer, but that it hasn't been determined yet. However, recent research has indicated that there are more genetic mutations being discovered that could be linked to cancers. As African-American women specifically, we develop breast cancer at an earlier age and it tends to be more aggressive. So while I’m no world famous icon, I am a member of a medically under served population who has experienced the trauma of watching loved ones suffer from the disease. Therefore, I choose to act.  Being a career mom and dream chaser, surgery is scary; recovery has been and will be difficult. What’s more unbearable at this moment in my life, is hearing those dreaded words, “You have cancer.” That doesn't make me a hero, it makes me afraid. 

Read the full version here http://www.forharriet.com/2015/04/why-i-chose-to-fight-cancer-by-removing.html

BAD ASS!

This photo represents one BADASS woman who is feeling fearless, optimistic, confident, and blessed! 10 years ago, I was riddled with apprehension about my future, consumed with thoughts of what if I am next?  Next to have breast cancer. And in my vanity, I thought about losing my cleavage, my hair, my eyes brows…my life. I reasoned with myself, girl you can get new boobs, and you wear weaves and wigs anyway. They are just body parts. But still, no matter how hard I tried to convince myself, I was still afraid.

                Now that I’m over 30, with my cancer-filled family history, it’s time to face facts and be preventative. I’ve been doing Breast Self-Exams since I was 12 because if you know my story, you are aware that my mother succumbed to breast cancer at only 23. Her mother and one of her sisters also battled ovarian cancer and died in their 50’s. Science has found that there is a link between the two. So in addition to the mammograms that began at 30, last month I sought genetic testing. Apparently, this BRCA testing can identify two genes that will predict my chances for developing either or both. What this means for me is that if the test results are positive, I have an 87% of developing breast cancer. Whoa! Right?  (A lot higher than the 8% chance the rest of the female population has) I will also have about a 50% chance of developing ovarian cancer throughout my lifetime.  As scary as it sounds, thanks once again to science, there are options for how to deal with it, which includes having all of the above mentioned removed and a bit of reconstructive surgery.  But before I jump to conclusions, I will have to wait to get the results in a few weeks.

                Facing my own mortality has somehow put a little more oomph in my already vibrant spirit.  My thinking has changed so much over the years, from thoughts of doom to assurance; mostly because I’m living in my purpose EVERY SINGLE DAY. So while many people are searching aimlessly for theirs, I discovered mine around the same age my mother was when she passed away. I am living for all of those who did not.  I have legacy on my shoulders to carry, one that I don’t find burdensome, but more like honorable. So this is why I will hold nothing back and continue to be the BADASS I was destined! Shine on!